Tuesday, May 18, 2010

Taking a breather

It's been a week since I started my super chemotherapy cocktail, and it definitely knocked me off my feet.  I've started Ixempra IV every three weeks and oral Zeloda pills.  I've been too tired to update the blog.  But I'm going to update every few days again.  Ugh, it was a loooong infusion.  I got a antihistamine pre-med pack and then a pepcid premed pack-- I didn't know they gave Pepcid through an IV.  Then I got my Aredia while they waited for the antihistamine to activate, finally the Ixempra.  I had my IV in at least 5 hours!   This time I got the fancy private room, otherwise we're all in a big room with windows and 10 filled recliners.  IV machines beeping off the seconds.
They stressed me out about the side effects of the drugs, I've doubled down this time. I took the advice of the Philadelphia specialist verses my local onc. and am getting twice the toxicity.  The Ixempra makes your bones hurt.  Like you have a high fever, without the fever.  I imagine it's the crackling of my bone marrow cells being fried.  The Ixempra will make my hair fall out.  I have about 2 weeks left of my mane.  The Zeloda gives you neuroapthy-- pins and needles in your hands and feet and worse.  The pictures horrified me.  And I live in fear of getting thrush, a common side effect of chemotherapy.
I've had to nap everyday since treatment started.  I hope I'll adjust, but chemotherapy is cumulative, so you get more toxic as you go on.  I'm feeling sad and overwhelmed.  But I'm still not giving up.  I'd eat live wasps in a glass shard gravy if they told me to.  Crunch, crunch, crunch.

1 comment:

Anonymous said...

I'm a-wishin' and a-hopin' the best for you. That's hoping -- not hopping, but I'd be glad to hop if you want me to.