Sunday, July 25, 2010

Am I a Cyborg, Cylon or just a bionic woman?


I am now part machine, I alternate terms for myself, am I now bionic, a cyborg (too dated) or a cylon?  I had surgery in Interventional Radiology on Tuesday to have a port put in.  I was very scared, although it's a simple surgery where they put you into twilight, awake and aware.  My head was under a tent so I couldn't see the actual carving.  I talked with the surgeon about recessing it so it didn't bulge out of the skin, he was kinda jerky about it, but he did a good job.  I went in at 7 and left at around 1030.  The port is a plug under my skin in my left breast, which allows easy access to a major artery for chemo, blood draw and some injections.  It still hurts when they plug in, i was especially sore on Wednesday when they fired it up. On the bright side, my left arm which was so painful  from damage is feeling better, it was almost immediate, like my arm took a deep breath and exhaled the pain.  I brought my dose back up 25%, per Dr. C's instructions.  My local onc was against it, but I have to remind myself that I can't trust her, not because she has bad intentions (I hope) but she doesn't practice the same medicine as Dr. C.  I'll leave it at that for now.  I'm fatigued and achy, my legs hurt, an stiff bone pain, but I haven't needed the aid of serious painkillers. which is better than I expected.  Sorry about the lame picture along with this post, I haven't gotten back to my studio.  So any opinions?  Cyborg, Cylon or bionic?
Wikipedia
Cyborg so known as a cybernetic organism, is a being with both biological and artificial values (e.g. electronic, mechanical or robotic) parts. The term was coined in 1960 (which I like)
 Cylon are a cybernetic civilization at war with the Twelve Colonies of humanity in the Battlestar Galactica science fiction franchise, in the original 1978 and 1980 series, the 2004 reimagining, as well as the spin-off prequel series, Caprica. In the 1978 series, the Cylons is also the name of the race who created the robot Cylons. (Nerd Alert)
Bionic - Jaimie Summers,  biology + electronics.  

Saturday, July 17, 2010

To Philly and Back Again


Philadelphia was hot and steamy.  And dull.  Fox Chase is in the northern suburbs, which seems to be frozen in time, but not a charming era.  So I've  posted a Paris picture -- Notre Dame Cathedral.
Dr. C was not happy with my blood and PET Scan results, only minimal improvement after 3 doses.  He was annoyed that my local doctor encouraged me to take a reduced dose of chemo again, so we are going back up to the higher one on Wednesday.  I was depressed about the lack of improvement, but I know in my heart it's working.  Now I just have to convince my cells.  He wants me back in 6 weeks, total drag.   I did get his personal email which will make communication better.  My veins have said uncle-- we can barely eek out blood from them, one is black from my elbow to hand, I feel like a Frankenstein.   I am having surgery on Tuesday and getting a port put in, defeated after 2 years of putting it off.  I was very sad about this, I'll write about it after.  My nurse swears I'll be be happier with my port than a new car, because of all the pain it will save me.

Today at the lab I had a very intense encounter.  The phlebotomist was having a hard time drawing blood since my arm is kaput, we started talking about how unfair life is.  She survived the killing fields of Cambodia.  She lost her husband, sister, mom and baby.  They took her husband out and shot him.  They took her sister and enslaved her.  We cried together as she described the fear she felt every day, the cruelty of the regime and starving as she escaped to Thailand.  Seriously, I'm weeping now as I think about our conversation.  She is one tough motherfucker.  And so am I.

Sunday, July 4, 2010

Back from Paris


We had quite a wonderful trip, despite some nasty side effects from the Zeloda.  I soldiered through.
We went to england first, visited my hubby's parents.  Then on to the beautiful apartment of Colette and JP in the  St. Germain neighborhood.  MERCI Colette and JP!  We went to churches, flea markets, a visit to the city hospital, Hotel Dieu, a dog bite (two different incidents!) AMENDMENT -- one dog bite and one hospital visit only, sorry!)
rode the metro and the bus, had a cooking class in the Marais, a canal cruise and enjoyed the delights of the marches.  The Zeloda side effects hit me as soon as we got there.  Hand and Foot Syndrome it's called.  Developed an infection and had to see a doc, so we picked the hospital in the city center, thought they would speak the most English.  They did and were very kind and efficient.  My entire visit and treatment cost me 68 Euro - with no health insurance!
Paris is really a delightful city, I think better suited for adults.  When I went as a jeune fille, I was more intimidated than charmed and was dragged through all the long lines for the big sights.  We found lovely small, unique museums to visit.  It's a grand, glorious city, steeped in vintage charm, which of course LOVE.  I missed the vintage paper market because of my illness, so it's top of my list when I make it back there.

  I've had my third dose of Ixempra since we got back, and am getting my first PET/CT scan on friday to see how the chemo is working.  Then I fly to the east coast to see Dr. C.  the last thing I feel like doing.
This is us on the Canal St. Martin boat tour, a great step into the rest of Paris.  I am now, unfortunately for everyone around me, peppering my sentences with french phases, and looking forward to going back
A bientot!