Showing posts with label PET Scan. Show all posts
Showing posts with label PET Scan. Show all posts
Saturday, July 17, 2010
To Philly and Back Again
Philadelphia was hot and steamy. And dull. Fox Chase is in the northern suburbs, which seems to be frozen in time, but not a charming era. So I've posted a Paris picture -- Notre Dame Cathedral.
Dr. C was not happy with my blood and PET Scan results, only minimal improvement after 3 doses. He was annoyed that my local doctor encouraged me to take a reduced dose of chemo again, so we are going back up to the higher one on Wednesday. I was depressed about the lack of improvement, but I know in my heart it's working. Now I just have to convince my cells. He wants me back in 6 weeks, total drag. I did get his personal email which will make communication better. My veins have said uncle-- we can barely eek out blood from them, one is black from my elbow to hand, I feel like a Frankenstein. I am having surgery on Tuesday and getting a port put in, defeated after 2 years of putting it off. I was very sad about this, I'll write about it after. My nurse swears I'll be be happier with my port than a new car, because of all the pain it will save me.
Today at the lab I had a very intense encounter. The phlebotomist was having a hard time drawing blood since my arm is kaput, we started talking about how unfair life is. She survived the killing fields of Cambodia. She lost her husband, sister, mom and baby. They took her husband out and shot him. They took her sister and enslaved her. We cried together as she described the fear she felt every day, the cruelty of the regime and starving as she escaped to Thailand. Seriously, I'm weeping now as I think about our conversation. She is one tough motherfucker. And so am I.
Tuesday, April 13, 2010
the journey
Sorry to have been offline for a while. A lot is happening right now. I just had a PET Scan today -- something my HMO generally has refused to do and am having an MRI brain scan tomorrow. The bigger news is that I am traveling to Philadelphia to see a big shot oncologist who specializes in metastatic inflammatory breast cancer. I don't know what to expect, but hope he has treatment and clinical trial suggestions. I spoke to one of his patients who has a similar diagnosis as me and she can't say enough good things about him. She also initially had my HMO and can't say enough bad things about them. The PET scan is interesting because they inject a tracer into you-- glucose and through that is monitors your blood flow and metabolic activity. The big shot oncologist that I'm meeting with insisted that I have one done to be properly evaluated. Interesting and distressing, considering my HMO has never done one on me. This image is part of my new series of collages. The pattern on the paper is taken from a vintage narcotic prescription drug pad. It was literally the watermark of the prescription, and it so aptly represents the ocean of my journey.
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